Resources for Families
The stigma of preterm birth is extremely isolating.
The Iris Fund knows that talking about it openly turns whispered conversations into a collective call for change.
Resources for Mothers Who Experience a Loss and Their Families
Return to Zero HOPE provides compassionate and holistic support for people who have experienced unimaginable loss during their journey to parenthood.
Cabbage Cream: this is the biggest secret among loss moms, we buy this for each other- having your milk come in without a baby is just terrible (some do still pump) many mothers need support with the pain related to engorgement. Cabbage cream really helps.
Star Legacy Foundation has a National Telephone Support line that is staffed by professionals who have personal experience with pregnancy and infant loss. It is not intended for medical emergencies. Please dial 911 if you or a loved one are in a life-threatening situation.
Hotline number 952.715.7731; ext 1.
Benjamin’s Gift provides financial support to bereaved parents for medical and hospital costs associated with stillbirth.
Social Media Accounts that are good to follow for loss and rainbow families: Pregnancy After Loss Support and Sisters In Loss
National Suicide & Crisis Hotline – Dial 988
Resources for Families Navigating Pregnancy After Loss
Mount Sinai’s Rainbow Clinic: The staff receive special training to be sensitive to the unique needs of bereaved parents. The Clinic itself is equipped to provide enhanced clinical care and psychological support to help reduce fear, anxiety, and future perinatal losses. They offer nutritional counseling, the support of social workers, genetic testing, and the very latest prenatal and obstetrical care.
Columbia University’s Rainbow Clinic: The Rainbow Clinic at Columbia supports expectant parents who have experienced perinatal loss and are planning for another child, commonly referred to as a “rainbow baby.” This clinic is designed to nurture families through pregnancy after loss with comprehensive care and specialized maternity services.
Utah Pregnancy After Loss Program: The Utah Pregnancy After Loss Program is designed specifically to support families after a pregnancy loss, newborn death, or severely complicated pregnancy. The program creates a support team of specialists including physicians and nurses, mental health professionals and peer support specialists.
Further Resources
NICU Parent Network
The NICU Parent Network is the premier professional organization of NICU parent leaders who collectively represent the needs and best interest of NICU families. Learn More
Read the NICU Baby’s Bill of Rights.
University of Utah Resource Library
The University of Utah offers extensive support resources for their patient population but also has published an impressive list of online resources available to all, including extended family members.